An honest look at a day-in-the-life of a young boy and his family, living with X linked myotubular myopathy (MTM). Luca's playful sense of humor and personality shine through even on the toughest of days.

To learn more about MTM, visit:
https://rarediseases.info.nih.gov/diseases/11925/x-linked-myotubular-myopathy
For family outreach and support in the US, visit: http://www.mtm-cnm.org/about-mtmcnm.html
To learn more about Living in the Light, visit: https://www.frompatienttoperson.com/