LIVE A RARE

STORY

Shifting the Focus
from patient to Person

A visual storytelling initiative as rare
as the individuals we document;
offering advocacy services tailored
to meet your community’s unique needs.

Welcome to the Living in the Light family

  • Max | Living with DMD

  • Kobe | Living with HAE

  • Sean | Living with FA

  • Ola | Survivor of PTLD

  • Darian | Living with GM1

  • Brandie | Heart Transplant Survivor

  • Abdullah | Living with Pompe

  • AJ & Aiden | Living with MPS II

  • Marlou | Living with Fabry

  • Hiorki | Living with Pompe

  • Theodore | Living with CLN3 Batten disease

  • Leslie | Living with DM1

  • Sora | Living with Fabry