Learn Our Stories | livinginthelight

“I have good days and I have bad days, but I stay positive when I think about things to come.”

“From Jack specifically, what I’ve learned is exactly what the definition of courage is.”
-Jerry, Jack's father

“You are beautiful how you are.”

—Elaine, Monsie's mother

“Living with Hemophilia has taught me how to take care of myself.”

“You have to understand a patient's perspective.
It’s about having
that compassion.”

—Maria

“He motivates us for everything, gives us strength for everything.”
—Angeles, Borja's mother

“Seeing and smelling the ocean—that’s all I’ve got to do. I’m going to be a mermaid. I’m going back to the ocean.”

“Come on! Let's Play!”

“My main focus now is to create more adaptive, accessible, universal, and barrier-free designs.”

“It’s not as easy as it looks, having Hemophilia, but through time you become accustomed to it and you learn to live with it”

“My biggest goal was still having the perception that I could do anything.”

“After surgery I gained a new perspective—I’m alive. I stopped worrying about the small things.”

“I want to be as independent as possible,
while I still can.”

“I want people to see visually impaired people as assets,

not as helpless.”

“If I can, I will, and if I can’t, I can’t. When it’s my time, 100% no regrets on anything I’ve ever done.”

“I can’t imagine my life
without Leighton, and I don’t know who I am going to be when she’s gone.”
—Ben, Leighton's father