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The future was forbidden to us. It was so hard, we didn't know how much time we would have with them.

Bo & Keke - Living with XLMTM


families & patients

Living in the Light is involved in patient advocacy projects and campaigns around the world that are only possible with your participation. Regardless of the specific disease or (undiagnosed) condition you are impacted by, we want to hear from you. We often are able to meet the families and people who get in touch with us or find creative ways to collaborate and further each others' missions.

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