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patient advocacy mission
Our highest priority is to meet the needs of patients with commitment and compassion. We strive to learn from patients, families, caregivers and patient advocacy leaders in order to understand the aspirations and daily challenges each of them face.

If I woke one day and I wasn't in pain, I'd probably be dead.
Hannah
14 years old

There is often too much focus on the diagnosis instead of on the person, and helping them to become somebody.
Erica
34 years old
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Israel
Albuquerque, NM

Christian
Atlantic City, NJ

Luke
Ann Arbor, MI

Miles
Santa Barbara, CA
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Jay
Ann Arbor, MI

Sammy
Santa Clarita, CA
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Noah
Project Alive Episode
AJ & Aiden
On the Playground
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Israel and Family
Luke
Playing Violin
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Hannah & Cassidy
Playing with Mom
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Jay & Luke
ATV in the Backyard
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training modules
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