patient advocacy mission

Our highest priority is to meet the needs of patients with commitment and compassion.  We strive to learn from patients, families, caregivers and patient advocacy leaders in order to understand the aspirations and daily challenges each of them face. 

Hannah & Cassidy

Virginia Beach, VA

Sisters living at home.


Juneau, WI

Researcher at Gene Spotlight Charity

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San Francisco, CA

AJ & Aiden

Ocean City, NJ


Thousand Oaks, CA

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If I woke one day and I wasn't in pain, I'd probably be dead.


14 years old

There is often too much focus on the diagnosis instead of on the person, and helping them to become somebody.