patient advocacy mission
Our highest priority is to meet the needs of patients with commitment and compassion. We strive to learn from patients, families, caregivers and patient advocacy leaders in order to understand the aspirations and daily challenges each of them face.
Hannah & Cassidy
Virginia Beach, VA
Sisters living at home.
Erica
Juneau, WI
Researcher at Gene Spotlight Charity
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Noah
San Francisco, CA
AJ & Aiden
Ocean City, NJ
Jack
Thousand Oaks, CA
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If I woke one day and I wasn't in pain, I'd probably be dead.
Hannah
14 years old
There is often too much focus on the diagnosis instead of on the person, and helping them to become somebody.
Erica