When you’re going downhill so rapidly, particularly with a wife and children the fear is inexplicable. Because you just don’t know where you’re gonna end up. Little things prey on your mind. 

Simon - Living with Pompe 

 

advocacy

"Can we put another quote or statement here? Maybe 2 or 3 sentences?
Proin fermentum nulla vel quam rutrum, in aliquet ante pharetra."

- Levi Gershkowitz  - Founder & Director